You should know who is behind a site that talks about a serious illness. This page says what we can say now.
What is The Generative Brain?
It is an independent, non-commercial website about Creutzfeldt-Jakob disease (CJD) and other prion diseases. It is written for families, clinicians and researchers, and all three draw on one shared collection of facts, the Atlas. Its purpose is set out in the mission.
Who runs it?
The site is an independent, non-commercial project, funded personally by its founder. It is not a registered organisation. Names are not published at this stage.
Is the site connected to any company, clinic or research group?
The project is funded personally by its founder. The funding and independence page has the details.
The site does not sell treatments, tests or services. Where a page mentions a company or a trial, it does so to inform you, and a mention is not an endorsement.
Are medical experts involved?
Not yet. The project has no clinical adviser, reviewer or lawyer at present, and we are looking for them.
How is content written?
Pages are written with AI assistance from named public sources, and a person decides what is published. The page on AI use is how we use AI.
How do I reach you?
See Contact. Please do not send health details about yourself or another person.
Can I use the site if I have difficulty reading or seeing the screen?
We try to make pages usable for as many people as possible. See accessibility. The terms set out what the site offers and what it does not.