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- Association of British InsurersThe Association of British Insurers (ABI) is the UK trade body for insurance and long-term savings firms, formed in 1985 and funded by member subscriptions.
- AFIFF Associazione Familiari Insonnia Familiare Fatale ODV (Treviso)AFIFF is a volunteer organisation (ODV) of families affected by fatal familial insomnia, based at the Treviso hospital in Veneto, Italy, founded in 20
- Associazione Italiana Encefalopatie da Prioni (AIEnP)AIEnP is an Italian non-profit association (ONLUS) for families of people with human prion diseases, registered in Rome under codice fiscale 97481260582.
CJD Support Group Network (Australia)The CJD Support Group Network (CJDSGN) is the Australian national support and advocacy charity for people affected by CJD and other prion diseases.
CJD FoundationUS nonprofit led by families that funds human prion disease research, supports families (genetic counseling guidance, support resources, an annual Fam
CJD International Support Alliance (CJDISA)CJDISA is an international coalition of national, grassroots nonprofit support groups for people affected by or at risk of prion disease, their families and carers.
Fondazione Telethon, ItalyFondazione Telethon is an Italian non-profit, founded in 1990 and now registered as a third sector body, whose mission is to fund Italian research on rare genetic diseases.
French national surveillance network for Creutzfeldt-Jakob disease and related diseases (RNS-MCJ), coordinated by Sante publique France and Inserm with AP-HP and the Paris Brain InstituteFrance has run active national surveillance of human prion diseases since 1992, through a network of volunteer neurologists, laboratories and neuropat
International Plasma and Fractionation Association (IPFA), AmsterdamIPFA is an Amsterdam based association of not-for-profit organisations that collect plasma, test it, or fractionate it into medicines; it presents its
NeuroPrion, European prion research network of excellence and successor associationNeuroPrion began as an EU Sixth Framework network of excellence on prion diseases, running from 1 September 2003 to 31 December 2009 with 14.4 million
National Society of Genetic CounselorsThe National Society of Genetic Counselors (NSGC) is the US based professional society for genetic counsellors, with its executive office in Chicago.
Plasma Protein Therapeutics Association (PPTA)The Plasma Protein Therapeutics Association (PPTA) is the trade association of private plasma collectors and companies that make medicines from human - Prion AllianceUS 501(c)(3) charity founded in 2012 by Sonia Vallabh and Eric Minikel that raises donations for prion research, funds the MGH biomarker cohort and pa
CJD Support Network (UK), national charity for all forms of CJD and prion diseaseThe CJD Support Network (CJDSN) is a small UK charity, registered in England and Wales as charity 1097173, that supports people affected by any form o