This page lists the ways to give that the organisations themselves publish. It does not recommend a recipient and gives no tax advice. A donor who wants a tax receipt, a restricted gift or a multi-year commitment should ask the organisation directly.
How can I give to the CJD Foundation?
The Foundation lists these routes on its donate page:
- An online donation.
- A printable form, to fax or mail, for gifts in honour or in memory of a person.
- Corporate matching gifts. The Foundation says it will help with the employer’s paperwork and gives a phone line, 1-800-659-1991.
- A Family Memorial Research Grant, which a family can establish by contacting the Foundation.
The Foundation describes itself as a registered 501(c)(3) non-profit organisation and says it holds a 4-star rating from Charity Navigator. The pages read did not state a founding year. Its site links a financial information page, which was not opened for this brief.
What do gifts to the CJD Foundation pay for?
The Foundation says its research awards are funded by donations, by Strides for CJD fundraising and by memorial grants from families. In January 2026 it announced ten awards, eight grants and two fellowships, chosen after review by its Scientific Advisory Committee, and says the grant programme has awarded more than USD 6 million to date. The donate page does not say whether a gift can be restricted to research, or whether stock or planned gifts are accepted. Ask the Foundation at help@cjdfoundation.org. Dates for the grant calls are on the grant calendar.
How can I give to the Prion Alliance?
The Prion Alliance home page describes it as a 501(c)(3) non-profit and invites donations through PayPal. The page does not describe a grant programme, calls or award amounts. Its founders are described there as running a prion laboratory at the Broad Institute. The funders overview reports that donations to the Alliance cover participant travel for the PRiSM trial, citing the Alliance’s mid-year update of 16 July 2026.
What is not known?
- Neither organisation’s pages read for this brief give a split of costs between research, family support and administration.
- Other prion-focused charities and national bodies exist. Their giving routes were not checked for this page. The Atlas organisations list is a starting point.
- A gift to any organisation funds the project, not an outcome. No prion therapy has shown efficacy in people, and the gaps page describes where funding evidence is thin.